I walked into Stroger Hospital today for a pump clinic meeting. Interestingly enough, I knew a few people sitting in the room. The diabetic educator was one. The other was a representative from Medtronic, the company that manufactures my insulin pump and supplies. He taught me how to use my CGMS when I first got it. Then there were two endocrinologists whom I hadn’t met before. All were there for me.
They requested my purple Minimed and downloaded all of my data, enough to build a pretty solid profile of what kind of person with diabetes I am. It was intimidating, to say the least. On a giant screen before me lay all of my data: They knew when I took my pump off, when I ate, when I checked my blood sugar, when I had chaos in my life. They knew more about me than the people I talk to every day. I couldn’t hide anything from them, not that I wanted to.
They saw the chaos that I went through earlier this week, when three cannulas bent on me. It was horrendous. The thing about bent cannulas, which are basically mini catheters that deliver insulin under the skin, is that you don’t know their bent until your blood sugar is running in the 400s and no matter how many units you deliver it doesn’t drop. Then after checking everything twice over, the last resort is to pull out the infusion site to see if there was anything wrong there.
Can you imagine doing that three times in a row? For two days, I felt like the sugar in my blood stream had turned to syrup and I was moving slower than a sloth. It didn’t stop me though. I still worked and when I lost all faith in technology, I decided to resort to shots. I’d never been so happy to use a syringe. Sanctification!
Anyway, I told them that story this morning and they saw it. So, we’re going to disregard that, they all concluded. After asking me to remember what happened earlier this week, what I ate and telling me to dive into technology, they had made subtle changes to my pump settings and told me to continue to track everything.
I had never been through a meeting like that, where I had, not one but four different people looking, examining and figuring out how I manage my diabetes. I had never done this before in my life. It seemed like a lot of work, but nonetheless, that’s what it’s there for– to know how you work and how your body works even better by just testing your blood sugar. Amazing.
Technology had once again piqued my interest. Regardless of the fact that I have this sensor on and that I have the pump on almost 24 hours a day, I had never thought about the wealth of data and collection of knowledge that this small thing was absorbing every minute of the day. It was a sponge and it told me more than my pancreas ever could.
With what they said, I would be able to predict low blood glucose, high blood glucose and in the end curve the spikes in blood sugar that make us feel so terrible. Isn’t that what we all want? To just feel good and feel “normal”?
Overall, the conversation was open and pleasant. I’ll be able to go back in September and hopefully this tracking system won’t be so overwhelming.
I always need help making sense of all that information – it’s totally overwhelming to me! Glad to hear you had such a good group of folks there helping you out.
Thanks! I’m relieved as well. It’s pretty cool. 🙂